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  • 枫下家园 / 医药保健 / 又一个白血病患者,大家能帮就帮帮吧。中文见后连接
    本文发表在 rolia.net 枫下论坛--------------------------------------

    Subject: Please help my wife, a leukemia patient! SOS!



    My name is Ying Shen. I am a postdoctor in Johns
    Hopkins University. As you can see in the following
    letter, we really beg for your help to save my wife's
    life. Any act from your organization will be
    appreciated very much.
    Her blood type is O positive and Rh positive.

    Ying Shen
    Hunterian 917
    725 N. Wolfe St
    Baltimore, MD 21205
    410-614-1890



    ----------------
    Dear Friend and Colleagues in and out of Scienctific
    Community,

    This is a SOS help request from Ying Shen and his
    wife, Xueqin Xia.

    We are writing to ask each of you to do us a small
    favor that will potentially save the life of someone
    very near and dear to us. Xueqin Xia (Chin), who works
    as a technician in the Johns Hopkins University, has
    been recently diagnosed with pre-B cell acute
    lymphoblastic leukemia with potential Philadelphia
    chromosome (the cytogenetic analysis is not complete
    but the pre-screen was positive). Chin is 30 years
    old, has been married only just 2 years and has a
    six-month old daughter. She is quiet, kind and
    amazingly capable. Unless Chin receives an allogeneic
    bone marrow transplant, she will not survive this
    disease. Chin¹s doctors will be searching for a
    suitable donor in the currently available databases
    throughout the world. However, the chances of finding
    a match within the US database are small since most of
    the registrants are Caucasion. The current database in
    China is limited and not well documented. Thus, the
    favor we are asking is that you and your friends and
    relatives be tested to find out if you are a suitable
    bone marrow donor for Chin.

    The Website for the National Bone Marrow Program
    is www.marrow.org; You can find details of the bone
    marrow transplant procedure and how to be tissue typed
    at their site. The relevant information is summarized
    below:

    1. Any individual can contact their local NBMP
    office nationwide and ask for an appointment to do
    his/her HLA typing. You only need to give a small
    amount blood.
    (http://www.marrow.org/FAQS/donor_faqs.html). If a
    group of 10 people or more want to be tested, the
    local office can arrange a special appointment.

    2. There is no fee for being tested if you are a
    minority, such as Chinese, under any situation.

    3. Being tested is also free of charge if you
    willing to be registered. If you are registered, you
    will remain in the registry until you reach age 60, or
    you can have your name removed at any time. If you
    just want to typed and not put in the registry, the
    cost of being tested is $60. We would like to pay this
    money if you prefer.

    4. You will then need to call the NMBP local
    office to get your typing result. The results are
    available in about 3 weeks. Chin¹s HLA type will be
    known by next week.

    Please be tested. Chin is a wonderful person and
    we need her to be with them for as long as possible.
    Moreover, even if you are not a suitable donor for
    Chin, you may be a suitable donor for someone who is
    loved and needed by their family just as much. Being
    listed on the national registry may help you save
    someone special's life.

    Also, this is the first SOS request I put in
    internet. I hope everybody could help us to:

    1. distribute this letter to anywhere, such your local
    Chinese scholar and student association, Chinese
    church and so on. Modification is OK if needed.

    2. to contact me, please send email to:
    yshen@mail.jhmi.edu or shen__ying@yahoo.com My
    telephone number is: 410-614-1890 (American domestic)
    or international call: 1-410-614-1890.

    Your help is really, sincerely appreciated. God
    bless you!

    Please visit website: www.xueqin.cc.

    Enclosed please find two pictures of Chin and our
    lovely baby.

    Thanks,

    Ying Shen (Dept. of Neurosciences, JHU SOM) 01/18/2002更多精彩文章及讨论,请光临枫下论坛 rolia.net
    • my God
    • 中国每年有大约400万白血病患者。中国国内到目前为止没有一个像样的骨髓库。
      • 你反动哟. 台湾就有, 好多大陆人是台湾人救的... 台湾不是中国??? 呵呵, 在加拿大弄点钱回大陆去做一个中心是不是又积德又赚钱...嗯..考虑一下
        • 你乱扣帽子呦!国内特指中国大陆地区。好啊,你回来做一个骨髓中心,你要是能解决RMB500/人的检测配型费用就好了。
          • 国内骨髓捐献者的验血费要自己付的吗?
            • 根据上面那个文章说的,60USD,如果是美国人好像要付费
          • 这个可以做成P2P的model, 呵呵, 检验法由患者掏嘛, 还有找福利彩票发行机构...党中央, 国务院, 国际红十字会, 笨啦灯....很多有钱人...
            • 患者自己掏?大海捞针式的配型,想想看得掏多少份才有希望找到合适的吧。再有,祸不单行简直是金玉良言,得病的总是穷人,或者说穷人似乎更爱得病。:-(( 所以呢,最好还是专家GUID赶快发财,发财以后做慈善事业吧。